Not Feelin’ It
I have to admit that I have totally not been feelin’ it the past week or so when it comes to blogging. I’ve struggled with what to write or finding the time to write when I do have something to say.
I’ve started to feel a bit hopeless when it comes to the situation with Libby, and I haven’t really wanted to admit that. I know we’re just really beginning the journey of figuring out what’s wrong with her, but I’ve been wrestling with a lot of “what ifs”. What if no one can help her? What if I do everything I can, and she’s still sick? What if all the air in her stomach and digestive tract causes damage to her organs? What if the malabsorption does long term damage to her? What if she’s 13 and embarrassed to go to the pool with her friends because her big belly protrudes from her skinny frame? Ugh.
I wonder if many people who have children with chronic medical problems also wrestle with the What Ifs. I know, that I know, that I know, that God has a plan for her. I know He loves her and holds her in the palm of his hand, and I can’t explain how incredibly thankful I am for that. I just get impatient. I want her fixed yesterday.
So moving along with the latest info. Her doctors found 1, possibly 2, parasites in Libby’s latest stool sample. The GI doctor was not optimistic that the parasites were causing all her problems, but still prescribed her a medication called metronidazole to get rid of them. I’ve tried not to get my hopes up that it would help, but that’s been hard. She’s now been on the medicine for almost 7 days with no improvement that I can see. If anything, the strong medication has made her feel worse. I’m disappointed. She has a few days left before she finishes the 10 days prescribed. If at the end of the 10 days, there is no improvement, we go back to mystery solving.
Her new lab work from the Vandy GI was mostly normal. Some genetic markers having to do with metabolic disorders were slightly out of the normal range, but apparently not abnormal enough to really raise any red flags. However, they will further investigate that if needed.
We started the Specific Carbohydrate Diet (SCD), but the fact that her medicine has sugar in it kind of screws that up at the moment. At least we’re having fun trying new recipes in the meantime. I keep meaning to post my meals for Meal Planning Monday, but instead have been spending ALL my time cooking. The SCDiet is pretty labor intensive, but honestly I’m really been enjoying it.
So for now we wait. We should know soon if Vanderbilt will be able to help her or if we will need to go somewhere else. Life is pretty normal while we wait. The kids are in good spirits and loving this warmer weather we are having, and I am too.We’re going about our daily routine and dealing with roadblocks as they come.
Well I’m off to bake some sort of yummy goodness. The oven is calling my name!